What is the Origin of Personal Data Sovereignty?

The concept evolved from traditional notions of bodily autonomy and medical privacy, adapting to the digital age where personal health data itself has become a valuable commodity. It is a philosophical and legal response to the centralized control of personal information by large technology and healthcare corporations. Recent global regulatory movements, such as the EU's General Data Protection Regulation (GDPR), have begun to formally codify this sovereignty into law.

What is the Mechanism of Personal Data Sovereignty?

The mechanism is implemented through technical and legal frameworks that provide the individual with transparent access, data portability rights, and the explicit ability to grant or revoke consent for specific data uses at any time. It requires health technology platforms to utilize decentralized or secure data architectures that minimize the risk of unauthorized access or misuse. This legal and technological structure is designed to place the individual firmly at the center of the health data ecosystem.

Personal Data Sovereignty

Meaning

Personal data sovereignty is the inherent right of an individual to possess complete authority and ultimate control over their generated health and physiological data, including the ability to decide how it is collected, stored, used, and shared. This principle empowers the individual as the ultimate owner and regulator of their hormonal profiles, genetic information, and continuous wellness metrics. It ensures that the use of one’s own health data serves their well-being and not solely the commercial interests of data aggregators or technology platforms.