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Patient-Led Research

Meaning

Patient-led research is a collaborative model of scientific inquiry where individuals affected by a specific health condition, particularly complex, often-undiagnosed hormonal or metabolic syndromes, actively initiate, design, conduct, and disseminate research studies, rather than merely serving as subjects. This model emphasizes the unique experiential knowledge of the patient community, recognizing their deep understanding of symptom patterns, treatment failures, and the quality-of-life impact of their condition. It often focuses on questions of immediate relevance to the patient population, such as the efficacy of novel, non-conventional interventions or the nuances of diagnostic criteria.