What is the Origin of Informational Autonomy?

The concept stems from established principles of personal liberty and privacy rights, specifically adapted for the digital age where data trails are easily created and shared, often without explicit, ongoing consent. In the context of wellness genetics, it recognizes that one's DNA sequence is an indelible aspect of selfhood requiring maximal self-determination.

What is the Mechanism of Informational Autonomy?

This autonomy is operationalized through granular consent mechanisms that allow users to selectively permit or deny access to specific data subsets, such as allowing access to general metabolic markers but restricting access to sensitive reproductive hormone predisposition data. Furthermore, it requires clear, accessible avenues for data modification or complete erasure from research or commercial databases. Upholding this mechanism ensures that data utilization remains aligned with the user’s evolving preferences regarding their physiological insights.

Informational Autonomy ∞ Area

Informational Autonomy

Meaning

Informational Autonomy is the individual’s fundamental right to control the collection, use, and dissemination of their personal biological data, including genomic markers and longitudinal hormone monitoring results, in the wellness sphere. This right empowers the individual to determine the context and audience for information pertaining to their unique physiology, such as sensitivity to endocrine disruptors. It is the ethical imperative underpinning data sharing agreements.