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Genetic Privacy

Meaning

Genetic privacy is the ethical and legal right of an individual to control the collection, storage, and use of their unique genetic information, including DNA sequencing data and any derived health risk predictions. In the clinical setting, it ensures that sensitive genomic data, which can reveal predispositions to various conditions, is protected from unauthorized access by employers, insurance companies, or other entities. Maintaining this privacy is paramount for fostering trust in personalized medicine and genomic health initiatives.