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Genetic Privacy Limitations

Meaning

Genetic privacy limitations refer to the inherent or existing constraints, exceptions, and potential vulnerabilities within the legal and technological frameworks designed to protect an individual’s genetic information. Despite robust legislation like GINA, these limitations acknowledge that certain entities, such as life insurance companies or employers with fewer than 15 employees, may not be fully covered, or that data de-anonymization techniques pose an ongoing threat to confidentiality. Understanding these boundaries is crucial for individuals who engage in direct-to-consumer genetic testing or advanced personalized hormonal medicine.