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Ethical Data Governance

Meaning

Ethical Data Governance is the principled framework that guides the responsible, fair, and transparent collection, storage, processing, and sharing of personal health data in a clinical setting. This governance model transcends mere legal compliance, emphasizing moral obligations to patients, including respect for autonomy, beneficence, and non-maleficence in data utilization. For hormonal health data, which is highly personal and predictive, strong ethical governance is critical to maintaining patient trust and preventing discriminatory outcomes. It requires continuous oversight and a commitment to data practices that prioritize the patient’s well-being above all other considerations.